Here now

The last 4 months or so have seen a shift in our household. We went from normal, to slightly off normal. Yogurt started to have GI and weight issues at the time we started solids. At first we weren't too concerned. His brother had had issues with weight gain too, but then the symptoms got worse, and the weight kept coming on and then off. All the while he remained bright and happy, so I still wasn't that concerned, but the doctors got worried. "sometimes it's hard to tell at this age, whether they are in pain....." This got me thinking about every time Yo had trouble sleeping. But still he was a happy baby.
So we went to the hospital for tests, and we stayed a full week.... They put him on a restricted diet, taught us how to place an orange feeding tube, and fed him more calories then he could possible drink of yucky tasting (and expensive!) elemental formula. That week in the hospital was the worst week in my life. The doctor's disagreed on diagnosis which caused lots of worry and prompted lots of questions. In the end we switched to a third doctor, because we were a little unhappy with how things went down, and the old doctors' seemed completely unconcerned that our child was being fed exclusively through a tube.
The first words out of the new doctor's mouth were "How much is he getting by mouth?" I keep wondering how much of this would have been avoided if we had seen her in the first place.
Four months in and most days Yo still gets most of his food through a tube. We have started to add back some food, all of which I prepare. He has had problems with rice, and we suspect corn. We haven't tried any of the other big suspects.
The process has been draining and has taken a toll on the whole family, but especially me. Luckily, Yo still remains happy.
I desperately want to reclaim our life, and its still there, but I feel like as soon as things start improving, BAM! something happens and throws us off kilter again. We are getting by, but it doesn't take much to unsettle us.
So in this newest year I am embarking on getting back, recovering, and being here.
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